Le SIDA au Ghana (serveur d'exploration)

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The experience of caregivers of people living with serious mental disorders: a study from rural Ghana

Identifieur interne : 000263 ( Main/Exploration ); précédent : 000262; suivant : 000264

The experience of caregivers of people living with serious mental disorders: a study from rural Ghana

Auteurs : Kenneth Ayuurebobi Ae-Ngibise [Ghana] ; Victor Christian Korley Doku [Royaume-Uni] ; Kwaku Poku Asante [Ghana] ; Seth Owusu-Agyei [Ghana]

Source :

RBID : PMC:4429259

Abstract

Background

Families and friends who give care to people with mental disorders (MDs) are affected in a variety of ways and degrees. The interplay of caregiving consequences: poverty, discrimination and stigma, lack of support from others, diminished social relationships, depression, emotional trauma, and poor or interrupted sleep are associated caregiver burden.

Objective

The burden of care on caregivers of people living with MDs was assessed in two districts located in the middle part of Ghana. Coping strategies and available support for caregivers of MDs were also assessed.

Design

A qualitative study was carried out involving 75 caregivers of participants with MDs registered within the Kintampo Health and Demographic Surveillance Systems. Data were gathered from caregivers about their experiences in providing care for their relations with MDs.

Results

Caregivers reported various degrees of burden, which included financial, social exclusion, emotional, depression, and inadequate time for other social responsibilities. Responsibilities around caregiving were mostly shared among close relatives but to a varying and limited extent. Religious prayers and the anticipation of cure were the main coping strategies adopted by caregivers, with expectation of new treatments being discovered.

Conclusions

Emotional distress, stigma, financial burden, lack of support networks, social exclusion, health impact, and absence of decentralised mental health services were experienced by family caregivers. These findings highlight the need for interventions to support people with MDs and their caregivers. This might include policy development and implementation that will decentralise mental health care provision including psychosocial support for caregivers. This will ameliorate families’ financial and emotional burden, facilitate early diagnosis and management, reduce travel time to seek care, and improve the quality of life of family caregivers of persons with MDs.


Url:
DOI: 10.3402/gha.v8.26957
PubMed: 25967587
PubMed Central: 4429259


Affiliations:


Links toward previous steps (curation, corpus...)


Le document en format XML

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<title>Background</title>
<p>Families and friends who give care to people with mental disorders (MDs) are affected in a variety of ways and degrees. The interplay of caregiving consequences: poverty, discrimination and stigma, lack of support from others, diminished social relationships, depression, emotional trauma, and poor or interrupted sleep are associated caregiver burden.</p>
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<p>The burden of care on caregivers of people living with MDs was assessed in two districts located in the middle part of Ghana. Coping strategies and available support for caregivers of MDs were also assessed.</p>
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<p>Caregivers reported various degrees of burden, which included financial, social exclusion, emotional, depression, and inadequate time for other social responsibilities. Responsibilities around caregiving were mostly shared among close relatives but to a varying and limited extent. Religious prayers and the anticipation of cure were the main coping strategies adopted by caregivers, with expectation of new treatments being discovered.</p>
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